Fundraising Events

13th Annual Pennies for Nicoll Golf Classic

Monday, July 14, 2014
1pm Shotgun

The Country Club of Colorado

Fundraising

SamPFN supports families who have children suffering with Sanfilippo syndrome and other MPS related disorders. Sanfilippo syndrome is a fatal genetic disorder that causes mental retardation, physical debilitation and death by the mid-teens.

Because there is no cure for Sanfilippo syndrome, the need for family assistance is astronomical. Although research for a cure is paramount, children living with the diagnosis need help immediately. We are able to provide such funding through the generosity of others who make a tax deductible donation to our foundation.

CameronPFN is a volunteer based foundation. Our Board of Directors and event planners give up their time freely to ensure the success of this organization, which keeps our expenses extremely low. More than 90 percent of our net proceeds directly benefit families in need. Because MPS is so rare, we rely on family and friends of affected children to keep us afloat. If you are touched by a child who is suffering, or who has suffered from this catastrophic disease, please consider supporting our cause. If you are a family in need, click here to go to our family support page where you will find a grant application.

 

DouglasWe are so very grateful for our loyal supporters! Every penny we receive gives hope to a devastated family. Thank you for your generous gifts.

 

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